Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome

  • Alex Jelly Adel Helmy Barbara A. Wilson
€ 140,58
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This book offers a personal insight into the experience of Alex Jelly, a professional fundraiser who developed a rare brain tumour, a papillary meningioma, which was successfully removed. She was left with Supplementary Motor Area Syndrome and associated problems including motor and speech impairments and a temporary psychosis. Discussing Alex's struggles and triumphs throughout her rehabilitation, this book offers an honest account of her journey from diagnosis to recovery. Part I introduces Alex's early life and employment, symptom onset and diagnosis, treatment and rehabilitation. Part II presents her neurosurgeon, Adel Helmy, and a clinical neuropsychologist, Barbara A. Wilson. Adel provides a medical context by explaining Alex's successful surgery and her post-operative experience. Finally, Barbara concludes with a comprehensive view of Alex's recovery and gives a voice to the therapists and psychologists who worked with Alex throughout her in and outpatient rehabilitation journey. This book provides support, understanding and hope for patients who have suffered a brain tumour, and their families. It is valuable reading for any professional involved in neurorehabilitation, studemts of clinical neuropsychology and those touched by brain injury.
Preface Acknowledgements Foreword by Dr Jill Winegardner PART ONE: Alex's Story Chapter 1: Life Before Chapter 2: Symptoms & Diagnosis/ The Lime in the Coconut Chapter 3: The Op / Happy Valentine's Day Chapter 4: Early Visits Chapter 5: Psychosis and stories - insights and butterflies Chapter 6: Cancer Chapter 7: Rehabilitation & Recovery Chapter 8: Naturopathy & strategies that have helped Chapter 9: Life Today PART TWO: Background Information from Adel Helmy and Barbara A. Wilson Chapter 10: Meningioma and the brain Adel Helmy Chapter 11: Supplementary Motor Area Syndrome. What is it? Why does it happen? Long term consequences Adel Helmy Chapter 12: Reports from staff and Alex's former partner Barbara A Wilson Chapter 13: Alex at the Oliver Zangwill Centre Chapter 14: Summary and Conclusions Barbara A Wilson References Index
'This remarkable book shares Alex's lived experience of a rare type of meningioma and the perplexing effects that dramatically altered her sense of reality and control over her thoughts, behaviour, speech and body. Part I charts her journey spanning life prior to the illness, symptom onset and diagnosis, treatment, experience of psychosis, rehabilitation and adjustment to the new normal. Part II is written by a leading neurosurgeon and a world-renowned clinical neuropsychologist and provides the clinical context for understanding Alex's illness and the rehabilitation that was integral to her recovery. Over time, Alex has managed to put the pieces of the puzzle together to find meaning in her illness with the support of family, friends and professionals. This beautifully written, candid and touching account will appeal to other people and family members affected by neurological conditions and cancer, and will inspire anyone facing major life challenges.' - Tamara Ownsworth, School of Applied Psychology, Griffith University, Australia
Uitgavejaar 2019
ISBN 9780367085407
Serie After Brain Injury: Survivor Stories
Verschijningsdatum 4 dec. 2019
Omvang 158
Auteur(s) Alex Jelly Adel Helmy Barbara A. Wilson
Bindwijze Gebonden
Taal Engels
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